This rare (of course!) neurological thing lets me walk and sit just fine but my legs tremor when standing and they demand I lean on something or sit down. At last I know why hour-long exercise classes wore me out, why I leaned on walls at parties. Mom had a more common and disabling tremor; fortunately she didn't live to see mine. I can stand for a while, more with a cane, but then the legs tremble and I widen my stance (this is called "the Frankenstance"), and widen and widen until I either have to start walking or sit down. I carry the cane to show folks I'm not drunk. It does not hurt, nor is it fatal. Neurologist (my first ever! He's really nice!) can only give stupefying anti-seizure drugs. There is almost no research because no public figure has anything resembling this except Germany's former chancellor Angela Merkel.
Well, I never wanted to stand in lines anyway. So I carry a collapsible stool or wheel a handsome, top-of-the-line folding rollator (a rolling walker with built-in seat) that I have named The Bolt, or carry a featherweight aluminum folding chair I took fishing. On hikes and mushroom hunts I can sit and rest and then keep going. It was news to me, but the act of standing takes big bandwidth in the brain, and one tires easily.
There are some benefits. People are helpful and kind. If I must seat myself at the hardware store while discussing what wrench I need, the clerk will squat so we're face to face. When I unfold the portable stool in the checkout lane people ask why didn't they think of that, or where did I get it because they need one too, and they tell me why. And in the woods today while sitting for a minute I saw a perfect little still life of oak leaves and the side of the acorn cap that looks like the iris of an eye, and one tiny hopeful green February shoot.
Another doctor prescribed physical therapy, and the exercises increased my strength, balance, and standing time. Exercise holds this thing at bay. If it thinks I am an easy mark, it's mistaken.
